2023 Gift Requests Xerien My son was born with a rare genetic mutation called KCNQ2, which causes epilepsy, global…adminDecember 9, 2023
2023 Gift Requests Vivian Vivian was born having seizures. After a few weeks in the hospital, we found out…adminDecember 9, 2023
2023 Gift Requests Violet Violet has PKS and our family moved from Chicago to Pennsylvania to be part of…adminDecember 9, 2023
2023 Gift Requests Stephanie Steph was born having seizures and had no normal brain activity so we were told…adminDecember 9, 2023
2023 Gift Requests Robert He is amazing and smart. We were told to be prepared to bury him by…adminDecember 9, 2023
2023 Gift Requests OLIVIA AHC SUCKS SHE IS THE RAREIST OF THE BUNCH WITH A ADDED DIGNOSIS OF EARLY…adminDecember 9, 2023
2023 Gift Requests Mallory Mallory was diagnosed with KCNQ2 in April of 2022, at just 6 months old, after…adminDecember 9, 2023
2023 Gift Requests Maci Ephlin Our sweet Maci was born at 27 weeks with many medical issues. She spent her…adminDecember 9, 2023
2023 Gift Requests Lucy Lucy is the first patient with her rare disease to receive a liver transplant. She…adminDecember 9, 2023
2023 Gift Requests Livia Livia is truly incredible! As she gets procedure after procedure, she smiles and giggles her…adminDecember 9, 2023
2023 Gift Requests Lilyana Lilyana was diagnosed at 5 months with KCNQ2. We have had 14 hospital stays so…adminDecember 9, 2023
2023 Gift Requests Leah Leah has a rare genetic condition that also has many other medical side effects. She…adminDecember 9, 2023
2023 Gift Requests Layton Layton is such a fighter on a daily basis. He works so hard in therapies…adminDecember 9, 2023
2023 Gift Requests Kenzie Kenzie has a rare genetic mutation (KCNQ2). She is delayed and completely dependent on a…adminDecember 9, 2023
2023 Gift Requests Kali Kali makes everyone fall in love with her! Her smile is contagious and she loves…adminDecember 9, 2023
2023 Gift Requests Joshua He deals with continuous pain. We will get it controlled then it will evolveadminDecember 9, 2023
2023 Gift Requests Joey It took 10 months to get a diagnosis for Joey. By that point, he had…adminDecember 9, 2023
2023 Gift Requests Joel Joel began having multiple seizures a few hours after birth. They were difficult to control,…adminDecember 9, 2023
2023 Gift Requests Jericho My son’s specific variant is one of a kind. There is no other patients to…adminDecember 9, 2023
