2023 Gift Requests Jake My child’s diagnosis is rare and can vary in physical abilities. He is unable to…adminDecember 9, 2023
2023 Gift Requests Jacob Jacob started having delays starting as an infant, always 6-8 months behind major milestones. He…adminDecember 9, 2023
2023 Gift Requests Jace Jace was adopted from foster care at the age of one. He has a gain-of-function…adminDecember 9, 2023
2023 Gift Requests Christopher Christopher has been the greatest teacher for our family, he may not be able to…adminDecember 9, 2023
2023 Gift Requests Chandler Chandler has a rare genetic disorder called KCNQ2 Encephalopathy Epilepsy. Chandler is on the severe…adminDecember 9, 2023
2023 Gift Requests Camille My child is around the middle part of the spectrum of people with this diagnosis.…adminDecember 9, 2023
2023 Gift Requests Bryndal Bryndal has struggled her whole life. She has never fit into the KCNQ2 box. She…adminDecember 9, 2023
2023 Gift Requests Avery Overall, Avery is a happy little girl! She is developmentally delayed, cannot sit, stand or…adminDecember 9, 2023
2023 Gift Requests Anna Anna’s deletion caused her to be born with kidney failure. In May of 2020, she…adminDecember 9, 2023
2023 Gift Requests Addison Addison is still very early in her journey, so we do not know the extent…adminDecember 9, 2023
2023 Gift Requests Aaron Aaron is very kind and loving. Very smart and tries to please everyone.adminDecember 9, 2023
2023 Gift Requests David David started life off without anyone knowing he had a genetic condition. He had a…adminDecember 9, 2023
2023 Gift Requests Austin Austin’s journey with PKS has been a unique one. We started his journey before technology,…adminDecember 9, 2023
2023 Gift Requests Elliott Elliott has a dual diagnosis of Pallister Killian’s syndrome and Autism. He took his first…adminDecember 2, 2023
2023 Gift Requests Avery Avery has PKS and since ita a mosaic syndrome ther is no telling how it…adminDecember 2, 2023