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Mallory was diagnosed with KCNQ2 in April of 2022, at just 6 months old, after suffering from constant uncontrollable seizures. No one in our area had ever heard of KCNQ2 before, let alone how to properly treating our girl. There is so many unknowns of the disease period, no one had any idea what to expect or what the future would look like for Mallory and our family. Dispite it all, Mallory thrives in her own, unique, happy, and inspiring way. In the face of all of her delays, struggles, and set backs, she shines with a light so bright you would never guess there were a dark spot in her life at all. We still have no idea what the future holds for our sweet girl, KCNQ2 has a very wide and sliding scale of severity, but we do everything we can to provide her with all the help she needs to keep her positive attitude and meet her milestones as she grows.
