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Joel began having multiple seizures a few hours after birth. They were difficult to control, and he went through numerous tests daily in the NICU to find a reason why he was having uncontrollable seizures. Thankfully, we found the proper medication for him after a month of being in the NICU. However, his seizures were treated reasonably quickly. He is still affected significantly by his KCNQ2 genetic disease. He has developmental delays, cortical visual impairment, autism, ADHD, and epilepsy and is non-verbal. He has done daily therapies since leaving the NICU and has made progress. He is rare because he is genuinely a a special person to all those who meet him. Everyone is always surprised by his presence and uniqueness.
