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Our Fitz is not able to walk or talk and is still in diapers. The little research that has been done shows such a wide range of symptoms for his deletion and most don’t have as large of a deletion as his. He also is missing 3 out of 5 genes associated with Lynch syndrome (which is very rare, usually they only have 1 missing) which means he has a much higher risk of developing cancer (and younger too).

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