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Rye’N was diagnosed with PKS at the age of one. Since then myself and my husband noticed that she didn’t really like wearing clothes and found that pj’s were more comfy. Having a child with PKS, we also noticed that there are things that an average child might do but our daughter probably would never do. Rye’N is very unique and we love her so much. We will not stop researching and learning new things about her rare genetic disorder.
