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Our daughter, Madison, has an ultra rare genetic disorder called BPAN. It is caused by a gene mutation on the chromosome. It’s a degenerative disorder that will shorten her lifespan. She is non verbal and needs assistance walking and 100 % assistance throughout the day. She’s a very happy girl with a beautiful smile and big brown eyes. We are Jewish. Do you happen to have Hanukkah PJ’s? Thank you!
