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Lochlan is a sweet, loving boy who brings so much joy to our family. When we found out his rare diagnosis, we pledged to move mountains for him. It’s been incredible to see just how many mountains he’s moving himself through perseverance and determination. (He has been known to fall asleep mid-situp because he refuses to give up). Navigating his rare syndrome has been hard because often doctors will be googling it in front of us in their office. Knowing that we are a part of community of other families who are on this rare journey with us makes it more manageable.
