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Hazel was born April 19 2019 at 35 weeks. Her birth was unexpected as I thought I still had another month to prepare. When she was born multiple doctors came to see Hazel and immediately knew she had Pallister Killian Syndrome. A rare syndrome that had only 150 known diagnosed children/adults. Being a 17 year old new mom, I had never heard of PKS. I did some research and found out only the basics. As Hazel grew and got older and as I became more knowledgeable with PKS I realized it’s a journey with each child. Hazel continues to learn and thrive each day among her peers at school and at home. We always called Hazel our star and I believe it’s always been for a reason. She’s the light in our family that can’t be replaced, her smile is contagious and her laugh is nothing but pure joy. I know each PKS family can relate and understand the love our PKS babies hold, it is a very special love. Hazel is only 4 and it is just the beginning of a long journey but I know it will all be worth it.
