[thumbnail]
[page_title]
My daughter has cranial paralysis, similar to Moebius Syndrome, but doesn’t match all criteria. Her imitations include not being able to smile, speak or eat. Genetic testing was unremarkable. We don’t have a name for what she has. We love to say she smiles with her heart. She is the sweetest little girl with a kind, warm heart. Her presence lights up a room and although we don’t have answers for her diagnosis, we have a way for her to eat and speak (Gtube and iPad AAC device). She is suctioned via mouth and nose throughout the day.
