Aurora’s Jammies

Aurora Kelly was diagnosed with pks when I was 33 weeks pregnant, she was born by 36 weeks and I had a palliative care plan in place as she also was diagnosed with hypoplastic left heart syndrome, they said she would be born dead or floppy and could not predict what the outcome would be, well she is here and as beautiful as ever, my little worrier has had heart surgery and has pulmonary hypertension which again will affect her life span, Aurora never stops amazing me! She really is an angel she has had to fight to be with us today, on home oxygen all the time, and fed by pump, but never complained about anything unless she was in pain.. the best baby and even get a few smiles now