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My name is Landon. I have a rare disease named Pitt Hopkins and when I was diagnosed there were less than 200 cases worldwide and 20 cases found in Canada. I am 14 but can’t speak and am still working on walking and running well. It took a long time to find my diagnosis until I was almost 2. I am a happy child and play with my brother and dog. My favourite thing to do is listen to music. Things are really hard for me most days but I am trying my best to learn. I try to talk on a device and my favourite days are at the beach with my family. Thank you for reading my story and for supporting rare diseases.