2023 Gift Requests Lucia Our little Lu or LuBird or Lucia or Bird (so many nicknames) is our first…adminNovember 19, 2023
2023 Gift Requests Lola Having 2 extremely rare conditions, heart transplant, and 30 other medical diagnoses. She has been…adminNovember 19, 2023
2023 Gift Requests Noah Noah is such a joy. He is unique and loving and his personality shines bright…adminNovember 19, 2023
2023 Gift Requests Brooke She is the only one in the world with her chromosome disorder. She has a…adminNovember 19, 2023
2023 Gift Requests Hazel Hazel was born April 19 2019 at 35 week, her birth was unexpected as i…adminNovember 19, 2023
2023 Gift Requests Helena At the time of diagnosis in 2019 Helena was one of 20 or so people…adminNovember 19, 2023
2023 Gift Requests Kallen Kallen is our sweet first born that changed our lives forever. He is the strongest…adminNovember 19, 2023
2023 Gift Requests Devon Doctors knew something was up with Devon when he was born. Early ultrasounds showed some…adminNovember 19, 2023
2023 Gift Requests Noah Noah loves lights and music. He’s the happiest little boyadminNovember 19, 2023
2023 Gift Requests Marvin Marvin has had an incredible journey with this diagnosis. We adopted him at 18 months…adminNovember 19, 2023
2023 Gift Requests Deacon James Deacon James has a duplication of 22q11.2 and is severely affected. He has struggled and…adminNovember 19, 2023
2023 Gift Requests Alondra Sophia Our PKS Princess Alondra Sophia is a Warrior and a fighter, she’s had several surgeries…adminNovember 19, 2023
2023 Gift Requests Marissa Marissa is our PKS princess, she is such a lovable, sweet and happy child. Marissa…adminNovember 19, 2023
2023 Gift Requests Emmy My daughter has cranial paralysis, similar to Moebius Syndrome, but doesn’t match all criteria. Her…adminNovember 19, 2023
2023 Gift Requests Henry Henry was diagnosed formally in 6/2023. He was born with vertical talus in the right…adminNovember 19, 2023
2023 Gift Requests Annabelle Annabelle has an extremely rare diagnosis with less than 100 world wide. She loves to…adminNovember 19, 2023
2023 Gift Requests Cathleen Cathleen is number 17 in a study of 30. Her condition is so rare that…adminNovember 19, 2023
2023 Gift Requests Isidore At 11 months he was diagnosed with Zard. It put a link together between many…adminNovember 19, 2023
2023 Gift Requests Faith Besides Faith having this rare genetic disease called hurler syndrome, she was also born at…adminNovember 19, 2023
2023 Gift Requests John John syndrome affects 1-70k children, we were lucky that the geneticist we saw had a…adminNovember 19, 2023