2023 Gift Requests Austin Austin is mildly affected with Pallister Killian Syndrome- he was a delayed walker and we…adminNovember 19, 2023
2023 Gift Requests Andrew Andrew is the face and inspiration behind Project 12-04. Andrew has PKS, or Pallister Killian…adminNovember 19, 2023
2023 Gift Requests Jacob Jacob was born with low tone, genetic disorder "features". We were told he wouldn't walk…adminNovember 19, 2023
2023 Gift Requests Derek He has seizures when he has carbs and sugar and doesn’t stay on his ketogenic…adminNovember 19, 2023
2023 Gift Requests Silas About 30-60 people are diagnosed with this specific Liposarcoma each year. (Per Cleveland Clinic) His…adminNovember 19, 2023
2023 Gift Requests Luca Luca was born a bubble baby. He lived inpatient, in isolation for 12 months, and…adminNovember 19, 2023
2023 Gift Requests Mathilda “Tilly” If you ever meet Mathilda aka "Tilly", you will instantly know that her motto is:…adminNovember 19, 2023
2023 Gift Requests AJ AJ is so patient, loving, hard working, loves genuinely, and most of all his smile…adminNovember 19, 2023
2023 Gift Requests Phillip (Philly) Philly is pure joy and brings so much light to those that love him. He…adminNovember 19, 2023
2023 Gift Requests Lily In addition to 8p23.1 deletion, Lily has multiple disabilities including Ataxic Cerebral Palsy, Autism level…adminNovember 19, 2023
2023 Gift Requests Henry There are only 350 cases of similar fashion know world wide. Even though he is…adminNovember 19, 2023
2023 Gift Requests Alexa Alexa is so fun and energetic… what makes her “rare” is the fact that she…adminNovember 19, 2023
2023 Gift Requests Hudson Although i feel like we have good medical care in our community, Hudson was not…adminNovember 19, 2023
2023 Gift Requests Cormac My sons diagnosis was a surprise at birth. He has had many surgeries and will…adminNovember 19, 2023
2023 Gift Requests Colden Colden was flown into Children’s Mercy at a day old with blood sugar levels and…adminNovember 19, 2023
2023 Gift Requests Annabelle Annabelle has PKS and is non verbal, but she communicates in her own way. Lately…adminNovember 19, 2023
2023 Gift Requests Wyatt My son has an unknown type of pontocerebellar hypoplasia and there are thousands in the…adminNovember 19, 2023
