Elijah was born 6 weeks early. At birth he was diagnosed as hypotonic. While in NICU they ran genetic testing which revealed he had PKS. We knew nothing about PKS nor did anyone at the hospital. Our road has been long, filled with hospital stays, many surgeries and many unknowns but most of all FAITH and LOVE! Elijah is such a joy we often say it is his spiritual gift because he fills everyone who meets him with it. He is silly, happy, curious, snugglie and most of all BLESSED!